Yes, I've been on Pinterest again, and found some helpful information on HLHS. HLHS is hypoplastic left heart syndrome. The following links explain it much better than I can. In a nutshell, HLHS is when the left heart is not fully formed, and underdeveloped. This includes the left ventricle, the valves, such as the mitral valve, and can involve the aorta.
http://www.pinterest.com/pin/277464027018295685/
http://www.pinterest.com/pin/277464027018295673/
There are various congenital heart groups on facebook for support, and you can also find info on twitter and support with #chd.
Until next time
Carole
mom to Abby, 16
HLHS
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