Another Milestone for Abby!

Anoher Milestone for my heart baby! She made her first communion this Sunday! I have pics up on facebook, she is a doll!

Next yr her younger sister will do the same!

For those of you still waiting for things in the mail from the giveaway in Feb, they are coming. I got 2 new jobs, and I am reallly really trying to get these out to you. Thank you all for visiting my blog about my miracle and lovely child abigail!

Carole

Site for chd parents, grandparents, kids and others who support chds

http://zbchde.homestead.com/kidswithheart.html


Kids With Heart NACHD, Inc. started out as a local support group in Northeast Wisconsin. Soon

after we went National. Kids With Heart NACHD, Inc was the first National organization dedicated

to providing support, education, and awareness for congenital heart defects.

Check it out today. Karen does an excellent job keeping us all informed. One thing she does is parent matching.
http://health.groups.yahoo.com/group/chd_babies/


have a good day.

Carole harris
I also have a chd group on yahoo.

Help for cardiac kids

If you have had a surgery, then maybe you've heard of scar tissue or maybe not. Either way it's something heart kids have to deal with. Check out this article.

http://www.news-medical.net/?id=46720

Have a great Easter

Carole

What a wonderful world indeed/ Let's have heart giveaway!

Prizes should be arriving. I've emailed many of you. You and your children are truly heroes in my eyes, and to everyone I have talked to on yahoo messenger. Now, I do have some moms who are also willing to ship gently used clothes should any of you moms need any. Just let me know. If I haven't been in contact with you not to worry. I will also post this on cafe mom, as I know that is where most of you heard about this giveaway. Please keep in touch!



Carole

Free flight information

I always get asked this question. If I know of any financial help for families. Here is a link, http://www.itsmyheart.org/resources/flight-assistance/ and it's to a great site. It is free flight information, and I hope it helps someone out. If you have information for support, financial aid, or other resources, and would like to follow or blog roll with me please comment, or email me at cachech@hotmail.com I look forward to hearing from you.

carole

Children and learning disabilities with chds.

may be he/she has add or a learning disability? Many doctors, cardioulogists and heart surgeons don't like to talk about, and research is ongoing. Parents are often hit in the face with every day struggles unforseen. There is help.

http://www.congenitalheartdefects.com/learningdisabilities.html

Carole

#links

#links

http://abbyandfriends.blogspot.com/

CHD awareness Quilt project

Along with the Lets give Heart giveaway, I will also be giving 10% of my earnings, from my businesses to The Chd awareness quilt project, please see the url below.



http://thechdquilt.homestead.com/CHDQUILTHOME.html

These volunteers sew quilt blocks, and make the blocks into quilts to honor our littlest heroes. The quilts are shown all over. There are places where you can volunteer to sew or donate. Please consider both, and if you have a chd child, get a block. I did! Abby has a Barney block.

Carole

Let's have heart giveaway

This is for you heart moms and kids. I am looking for donors, but I also need heart moms and kids too to give the goodies away to! I have a few, but I want this to be an annual thing. Let's give heart giveaway is about giving back to the chd community. I know what it is like to be a heart mom, I have Abby. Abby has HLHS. So I am asking heart moms to contact me by leaving a comment in my blog to be entered in my givewaway. MAKE sure you leave contact info, so I can give you your goodies. My blog is http://abbyandfriends.blogspot.com ONLY for congenital heart defect families.



Also I have moms that I am friends with online that want to donate gently used closed to heart moms in need. If you are, let me know by messaging me or leaving a comment in my blog!





Donations for the giveaway will get a button on my blog http://abbyandfriends.blogspot.com I am really excited about this. If you know of any businesses, or are a rep for something and would like to donate let me know. Also some of my ladies who are donating prizes want to know, what is it heart moms and kids would like for National CHD day. Feel free to leave a message at cafe mom, my email, ning, my space or any way. Thanks so much heart moms for all you do! You are truly heros!



Carole Harris

mom/nurse/heart mom to abby 10 yo, HLHS

writer, blogger, social media networker



Prizes will be given away during the week of Feb 7th through 14th, and I will be following up to make sure everything goes smoothly!

Have a broken heart?

Hi everyone! This is my congenital heart defect blog! Do you know what a congenital heart defect is? Let me explain. It is the number 1 birth defect. 1 in 100 births result in congenital heart defects, and there is no known cause. It is a silent killer. What is a congenital heart defect?
Congenital heart defects are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware that she is pregnant. Defects range in severity from simple problems, such as "holes" between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves. (information obtained from American heart association)

#1 Cause of death under the age of 1
There are 35 types of congenital heart defects




12 Canadians are born each day with a congenital heart defect

180,000 The estimated number of Canadian adults and children with CHD. Many babies go home undiagnosed, only to die silently in their cribs. The lucky ones get diagnosed as adults. The teen that collapses on the basket ball court from heart problems may have had an undiagnosed congenital heart defect. While autism is a new diagnosis in kids, it is still more visible then congenital heart defects. a Congenital heart defects have less funding for research than pediatric cancers and pediatric aids. Congenital heart defects have less celebrity attention than pediatric cancer which means less "LOUD" exposure. What is "LOUD" exposure. Let's face it, when you have Robin Williams pitching for your cause, you stand up and notice.

There is hope, there is something you can do. Congenital heart defect day is Feb 14th. You can tell one person what a congenital heart defect is. If you tell one person, they can tell one person and so on. You get the drill. In Illinois, it is a national day, in other places it is a week. My theory is every day is learn about congenital hearts day. We can never do too much for our small brave heros. They are the true heros as well as the moms, dads and grandparents who take care of them. Learn about congenital heart defects and spread the word. Abby has a congenital heart defect. Let's talk!