Some helpful info

Yes, I've been on Pinterest again, and found some helpful information on HLHS.  HLHS is hypoplastic left heart syndrome.  The following links explain it much better than I can.  In a nutshell, HLHS is when the left heart is not fully formed, and underdeveloped.  This includes the left ventricle, the valves, such as the mitral valve, and can involve the aorta. 



http://www.pinterest.com/pin/277464027018295685/

http://www.pinterest.com/pin/277464027018295673/


There are various congenital heart groups on facebook for support, and you can also find info on twitter and support with #chd.  

Until next time

Carole
mom to Abby, 16
HLHS

Some information I grabbed off pinterest

http://www.pinterest.com/pin/306385580873514435/

http://www.pinterest.com/pin/261490322088978226/


HLHS, or hypoplastic left heart syndrome  This is what Abby has. http://www.pinterest.com/pin/105060603782662890/





I think I 've given enough resources to start.

Until next time.

Carole

Chd info on Pinterest

It has been a while since I updated this blog.  My HLHS child is now 16, and will be on the roads very soon, possibly.  We have to check into drivers ed in the spring.  She is doing very well.  Abigail has 3 A's as a sophomore 2 B's and 1 C.  I have to say this year has less drama, perhaps to Abby growing up a bit.  Perhaps to having much better teachers than ever in her school time.  I vote for both, with the latter being the main issue in my opinion.  

The main reason I am updating is because I love pinterest.  Here is my board for chds and I plan to add to it.  http://www.pinterest.com/mom4abb/congenital-heart-defects-info/  Please check it out.

Until next time

Carole

We recently had another holter monitor test for Abby.  No call from the cardiologist, so I am assuming all is good.  Any heart moms out there reading this blog.  It has been a while since I blogged.  My heart kid, Abigail or Abby is 15 yrs old now.  She has HLHS, and while she is limited in activities, she is quite creative.   I'd love to get together with some heart moms who have kids around Abby's age.  I am going to publish this blog in hopes of a get together.  I am also going to post information about congenital heart defects as I have promised so many times before.

For all you heart moms, while Abby is 15, I do know some of what you are going through.  I hope you know you have a shoulder to cry on if necessary, and an extra ear for listening.  Lets' talk, share our experiences, stories and tears together.


Abby's progress:  While Abby fatigues more than that of the usual teenager, she is fearless.  There is nothing she won't try, and don't try and tell her she is still a child.  She loves the stories from Hetalia, and will tell you she doesn't like her sister (but in fact she loves her, she'll never admit it to you though)  Temperamental while charitable and thoughtful are some of Abbys' characteristics that come to mind.  She is an avid writer, even though with her motor skills it proves difficult, Abby is quite the story teller.  I hope one day she is a number 1 best selling author.  I believe with all my heart she can do it.

Abby loves animals and loves our dog Sparky.  Abby volunteers at the animal shelter once a week with her best friend Jana.  Very much girls, my two daughters couldn't be more opposite.  Abby loves the mall and to shop, and my Becky, may love the mall, but hates to shop.

This summer will be without summer or drama camp due to my work schedule and mileage on my car.  Instead I am hoping to get a family membership at the YMCA and do some swimming.  Abby loves the sun, summer, and swimming.  Swimming lessons are in order for both girls as well as other activities and splash station.

While Abby fatigues easily, she is my night owl.  And congratulations to Abby, she is becoming a reader ( I hope)  We are both reading Divergent.  Divergent is the book highschoolers have to read over the summer.

That is my update on my highschooler, and heart kid.  Until next time.

Carole